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肌萎缩侧索硬化规范处理可归纳为及早和准确的诊断,必要时进行基因分析及遗传咨询,以恰当方式及时告知患者,组织多学科照料患者。有足够证据证明及早服用利鲁唑等神经保护性治疗、积极开展无创呼吸机辅助呼吸、合理早期进行经皮胃造瘘肠内营养等可提高患者生存质量及延长存活期。完善的症状治疗也可提高患者生存质量,重视患者与外界交流能力的维护,从人文角度正视姑息治疗及临终前关怀。
Amyotrophic lateral sclerosis standardized treatment can be summarized as early and accurate diagnosis, if necessary, genetic analysis and genetic counseling, timely and appropriate manner to inform patients, organize multidisciplinary care of patients. There is sufficient evidence to prove that early taking riluzole and other neuroprotective treatment, and actively carry out noninvasive ventilator-assisted breathing, rational early percutaneous gastrostomy enteral nutrition can improve patient quality of life and prolong survival. Improve the symptoms of treatment can also improve the quality of life of patients, attach importance to the ability of patients to communicate with the outside world to maintain, from a humanistic point of view palliative care and dying care.