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目的 调查癫痫患者及其家属对癫痫知识的掌握程度。方法 以在华山医院门诊诊治的癫痫患者及其家属各170人为研究对象,采用问卷调查的形式了解其个人情况和癫痫的患病情况,并进行一项包含34个问题(满分为34分)的“癫痫知识问答”。结果 癫痫患者和家属“癫痫知识问答”的平均得分均较低,分别为16.5分±8 2分和16.1分±8 5分,差异无统计学意义。城区患者及其家属回答正确率明显大于郊区患者及其家属。调查对象对癫痫的“病因”知识掌握最为不足。多因素分析显示,“癫痫知识问答”的得分与患者的居住地(城区／郊区)(P-0 0001,OR=52 963)和文化程度(P=0.0294,OR=2 266)有关,郊区患者和文化程度低患者的癫痫知识掌握较差。“癫痫知识问答”的得分仅与家属的居住地(P=0 0001,OR=37.229)有关,郊区家属得分较低。结论 应重点加强对农村地区癫痫患者及其家属的知识普及和教育。
Objective To investigate the mastery of epilepsy in patients with epilepsy and their families. Methods A total of 170 epilepsy patients and their families diagnosed in Huashan Hospital outpatient service were enrolled in this study. The questionnaire was used to investigate their personal condition and the status of epilepsy. A questionnaire was conducted to investigate whether there were 34 questions “Epilepsy knowledge quiz ”. Results The average scores of epilepsy patients and their families in Epilepsy Knowledge Quiz were both lower than 16.5 points ± 82 and 16.1 points ± 85, respectively, with no significant difference. Urban patients and their families to answer the correct rate was significantly greater than suburban patients and their families. The respondents had the most inadequate knowledge of epilepsy “cause ”. Multivariate analysis showed that the score of “Epilepsy Knowledge Q & A” was related to the place of residence (city / suburban) (P-0 0001, OR = 52 963) and education level (P = 0.0294, OR = 2 266) Outpatient and poor education of patients with poor knowledge of epilepsy. “Epilepsy knowledge quiz ” score only related to the family’s place of residence (P = 0 0001, OR = 37.229), suburban families score lower. Conclusions Should focus on strengthening knowledge and education of epilepsy patients and their families in rural areas.