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目的调查分析癫痫患者与其配偶的生存质量状况并比较其差异。方法以同质性的145例隐源性癫痫为对照,使用信效度均公认良好的生存质量评定量表,对145例外伤后癫痫患者与其配偶进行调查。结果①WHOQOL-BREF:外伤后癫痫配偶的总体生存质量(t=3.928,P<0.01)、心理(t=5.334,P<0.01)、社会关系(t=9.654,P<0.01)和环境领域(t=4.337,P<0.01)得分均显著性低于患者,患者的总体健康状况(t=5.334,P<0.01)以及生理领域(t=4.876,P<0.01)得分均显著低于配偶。外伤后癫痫患者在总体健康状况(t=3.809,P<0.01)以及生理(t=2.376,P<0.05)、心理(t=2.959,P<0.01)、社会关系(t=5.309,P<0.01)、环境(t=3.745,P<0.01)4个领域得分上均显著性低于隐源性癫痫患者,外伤后癫痫配偶的总体生存质量(t=4.036,P<0.01)、总体健康状况(t=2.807,P<0.01)以及社会关系(t=2.203,P<0.05)和环境(t=3.536,P<0.01)领域得分均显著性低于隐源性癫痫配偶;②QOLIE-31:外伤后癫痫患者在发作担忧(t=3.767,P<0.01)、生活满意度(t=5.051,P<0.01)、情绪(t=3.819,P<0.01)、精力/疲劳(t=3.517,P<0.01)、社会功能(t=4.136,P<0.01)和总体得分(t=2.925,P<0.01)均显著低于隐源性癫痫患者。结论较之隐源性癫痫,外伤后癫痫患者及其配偶的生存质量更低,但表现不同。
Objective To investigate the quality of life of epilepsy patients and their spouses and to compare their differences. Methods A total of 145 cases of epilepsy after traumatic epilepsy and their spouses were investigated by using 145 cases of homozygous hidden herpes epilepsy as control. The reliability and validity were all well-accepted quality of life measures. Results: ①WHOQOL-BREF: The overall quality of life of post-traumatic epilepsy spouses (t = 3.928, P <0.01), psychology (t = 5.334, P <0.01) = 4.337, P <0.01). The score of the patients was significantly lower than that of their spouses. The overall health status of the patients (t = 5.334, P <0.01) and the physiological field (t = 4.876, P <0.01) The patients with posttraumatic epilepsy showed significant differences in overall health status (t = 3.809, P <0.01) as well as physical (t = 2.379, P < ), Environment (t = 3.745, P <0.01), the overall quality of life of post-traumatic epilepsy spouse (t = 4.036, P <0.01) t = 2.807, P <0.01), and the score in social field (t = 2.203, P <0.05) and environment (t = 3.536, P <0.01) were significantly lower than those in cryptogenic epilepsy; Epilepsy patients had seizures (t = 3.767, P <0.01), life satisfaction (t = 5.051, P <0.01), sentiment (t = 3.819, ), Social function (t = 4.136, P <0.01) and overall score (t = 2.925, P <0.01) were significantly lower than those of cryptogenic epilepsy. Conclusions The quality of life of patients with traumatic epilepsy and their spouses is lower than that of cryptogenic epilepsy, but their performance is different.