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采用问卷调查和访谈方式,对上海市长宁区和安徽省合肥市的103名自闭谱系障碍儿童家长进行调查。结果表明:(1)自闭谱系障碍儿童家长迫切需要来自家庭内部、学校、社会的支持。他们迫切需要了解与促进自闭谱系障碍儿童发展相关的知识和技能;需要学校有专业的特教师资,能提供个别化教育服务;需要获得经济支持。(2)儿童本身、家长、家庭情况三方面因素都会对自闭谱系障碍儿童家庭的需求产生影响。研究者据此建议,针对自闭谱系障碍儿童的不同家庭需求,给予有针对性的支持。
Using questionnaires and interviews, 103 parents of children with autistic spectrum disorder were investigated in Changning District, Shanghai and Hefei, Anhui Province. The results showed that: (1) Parents of children with autistic spectrum disorder urgently need support from their families, schools and the community. There is an urgent need to learn about the knowledge and skills associated with promoting the development of children with CSDs; the need for specialized special education teachers in schools to provide individualized education services; and the need for financial support. (2) Children themselves, parents and family conditions all have an impact on the needs of children with autistic spectrum disorders. Researchers accordingly recommend that targeted support be provided for different family needs of children with autistic spectrum disorders.