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目的了解脑瘫患儿父母亲的生活质量,分析脑瘫患儿不同运动功能情况对患儿父母亲的生活质量的影响。方法 2012年3月-2013年6月,随机抽取湖南省妇幼保健院小儿康复中心的200例脑瘫患儿父母,由接受专门培训的调查者指导其填写调查表,剔除资料不完整者,确定188例符合纳入标准、并知情同意的父母为研究对象,调查脑瘫患儿不同运动功能情况对其父母亲生活质量的影响。结果不同运动功能级别患儿的父母生活质量(F=2.806,P=0.027)、日常生活差异(F=2.562,P=0.040)差异有统计学意义,Ⅰ级、Ⅱ级、Ⅲ级运动功能脑瘫患儿父母的生活质量、日常生活得分高于Ⅳ级、Ⅴ级运动功能脑瘫患儿父母的生活质量、日常生活得分。Ⅳ级运动功能脑瘫患儿父母所感到的压力得分最高(F=11.856,P=0.018);Ⅴ级运动功能脑瘫患儿父母所感到的焦虑得分最高(F=11.446,P=0.022)。结论由于现在大部分的脑瘫患儿能得到早期、全面、系统的康复治疗,其父母都能积极配合,但他们仍需要得到更多相关信息和生活上的帮助,需要全社会的关注,尤其是Ⅳ级、Ⅴ级运动功能脑瘫患儿的父母,需要更多精神心理和政策的支持。
Objective To understand the quality of life of parents of children with cerebral palsy and analyze the effect of different motor functions of children with cerebral palsy on their parents’ quality of life. Methods From March 2012 to June 2013, 200 children with cerebral palsy were randomly selected from parents of children with cerebral palsy in Hunan MCH center. Instructors who received specialized training were instructed to fill in the questionnaire, remove the incomplete data and determine 188 Cases meet the inclusion criteria, and informed consent of parents as subjects to investigate children with cerebral palsy different motor function on the quality of life of their parents. Results The differences of Parents’ quality of life (F = 2.806, P = 0.027), daily life (F = 2.562, P = 0.040) in children with different motor function grades were statistically significant, and Grade Ⅰ, Ⅱ and Ⅲ motor function cerebral palsy Parents with children’s quality of life, daily life scores higher than the level of Ⅳ, Ⅴ motor function of children with cerebral palsy parents living quality, daily life score. Parents rated as having the highest stress scores (F = 11.856, P = 0.018) in the children with cerebral palsy who had class Ⅳ motor function had the highest anxiety score (F = 11.446, P = 0.022). Conclusions Since most children with cerebral palsy are now able to get early, comprehensive and systematic rehabilitation and their parents are able to cooperate actively, they still need more relevant information and life-support. They need the attention of the whole society, especially Ⅳ, Ⅴ level motor function of children with cerebral palsy parents need more psychology and policy support.