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目的:建立具有中医特色的儿童哮喘缓解期生存质量量表,在此基础上丰富哮喘缓解期中医药疗效评价体系。方法:按照国际公认的量表制作原则,参考其他慢性疾病的量表制作方法,结合相关文献、前期研究成果和德尔菲法专家咨询形成量表条目池,通过多中心、大样本的设计原则进行临床问卷调查及电话回访,运用相关统计分析方法筛选条目构建初始量表,后对初始量表进行信度、效度及反应度的考评。展望:制定具有中医内涵和适用于中国社会文化背景下的普适性儿童哮喘缓解期中医生存质量量表是当前哮喘缓解期中医疗效评价体系走向世界的迫切需求。
OBJECTIVE: To establish a quality of life questionnaire for remission of asthma in children with Chinese characteristics and to enrich the evaluation system of TCM efficacy in remission of asthma. Methods: According to the internationally accepted principle of scale production, reference to other chronic disease scale production methods, combined with relevant literature, previous research results and Delphi expert advice form a pool of scale entries, through the multi-center, large sample design principles Clinical questionnaire survey and telephone interview, using the relevant statistical analysis methods to filter the entry to build the initial scale, after the initial scale reliability, validity and responsiveness evaluation. Prospects: To formulate TCM quality of life questionnaire with universal connotation of Chinese medicine and universal childhood asthma remission for Chinese society and culture is an urgent need for the Chinese medical efficacy evaluation system to go to the world in the current asthma remission period.