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J-RARE.NET: PATIENT REGISTRY (PR) AND PERSONAL HEALTH RECORD(PHR) SERVICE FOR RARE AND INTRACTABLE D
[会议论文] 作者：Kunihiro Nishimura,Yukiko Nishimura,J-RARE,Soichi Ogishima,
来源：The 2nd International Rare Diseases Research Consortium Conf 年份：2014
In this article,we would introduce our unique style of NANBYO (rare and intractable) diseases patient registry led by patient organizations and themselves,named"J-RARE.net".J-RARE.net is mixed service...
ACTIVITY OF PATIENT ADVOCACY ORGANIZATIONIN JAPAN: USEFUL APPROACH TO THE DRUG DEVELOPMENT ABOUT MIT
[会议论文] 作者：Yukiko Nishimura,Taro Inaba,KOINOBORI project team,Masashi Suganuma,
来源：The 2nd International Rare Diseases Research Consortium Conf 年份：2014
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ACTIVITY OF PATIENT ADVOCACY ORGANIZATIONIN JAPAN: USEFUL APPROACH TO THE DRUG DEVELOPMENT ABOUT MIT
[会议论文] 作者：Yukiko Nishimura,Taro Inaba,KOINOBORI project team,Masashi Suganuma,
来源：The 2nd International Rare Diseases Research Consortium Conf 年份：2014
In this article,we would introduce our Drug Development Support Program (DDSP) about mitochondrial diseases.KOINOBORI is a nonprofit organization to bring accumulated knowledge and experience together...
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